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Short lines of the journey 8.04 - 8.29.2010
As we began to get out of the van last night from coming home from a meeting at the church Joshua said from the back, "JESUS, thank you for saving my life." We stopped and all then thanked Jesus for saving our lives....Matt and I teared. Through all of this chaos in his little life with PANDAS...he knows HIS ROCK!
August 4 at 10:55am
Joshua's Autism (PANDAS has increased his OCD...can you tell?)
Although, I do like the fact that he is so organized. :O)
(Actually, instead of looking at it as regression, I choose to look at it as his Autism is trying to bring order into the chaos that PANDAS has brought into his mind.) August 6 at 7:13am
Psalm 37:39 (the Message)
The spacious, free life is from God, it's also protected and safe. God-strengthened, we're delivered from evil— when we run to Him, He saves us.
August 6 at 2:37pm
As Joshua hides under Matt's desk at the church my heart is aching and attempting to maintain. My heart breaks for him and that there is nothing I can do but sit in silence with him as this PANDAS D/O brings such chaos to his thinking, functioning....LIFE. Sigh...LORD I know you are BIGGER! Please.....
August 8 at 10:43am
The straw, the camel, the back....our little girl finally had her breaking point last night with all the things happening with Joshua's PANDAS D/O and daddy's heart. I am so glad she knows she can come to me and cry and tell me how angry she is and how scared......pray for our proverbial backs to strengthen....this journey is HOT, ROUGH, STONEY, MUDDY, DUSTY, FOGGY….exhausting. Nahum 1:7, Joshua 1:9
August 14 at 12:38pm
Ladies of 8.12.2010: Thank you to my friend who waited as I sat with Joshua who was crying. Thank you to my friend who has experienced Joshua's PANDAS in full this summer and returned everyday to still watch and show him unconditional understanding and love. Thank you to my friend who came and hung out with me at the soccer game and after. You three know who you are and will know how much the moments have meant.
August 14 at 7:49pm
August 16 at 8:43pm
PANDAS...MEDICATIONS...."MOMMY MY BRAIN IS ALL MIXED UP!"...."I'M CONFUSED!"....ring, ring..."hello?" "Hi Angel, this is Dr. Reed......" (just breathe)
August 20 at
10:21pmThrough Joshua's tears of asking what has happened to him, and why is he so shy, and "I want to be the boy I used to be...what happened..." I was able to explain PANDAS to him. He then begged God to remove it and asked if his doctor could put him in the hosptial to remove it.
August 21 at 8:07pm
Pensive day...pensive weekend with all the events and things that took place inside my son's mind, my daughters expressions and dialect about life...waiting to see what God does today.
August 22 at 8:29am
PANDAS....AUTISM....ANXIETY....FEARS....Mommy please pray for me!!!!
August 23 at 8:20pm
His quote today...after one small thing stopped working....and a HUGE MELTDOWN...."Mommy, I JUST WANT MY OLD LIFE BACK." So, how do I encourage my little guy that this is a season....a very LONG season. He then stated, "I just want to be treated like an autism boy again."
August 24 at 8:51pm
2 days....he has been okay at school. I'm breathing....
August 26 at 10:29pm
Another steroid tx. Added meds.....
What he told Dr. Reed....I just want my old life back.
August 28 at 11:49am
“Mommy, I will take all of my medicine…I just can’t take the fire pills anymore.” What Joshua told me, while holding his tongue and crying after his last dose of his tx on day one.
August 29 at 5:09pm
